Alexis

tracy n alexis
 
In the spring of 2007 Alexis was a very happy, shy, and well adjusted 13 year old young lady. She had been diagnosed with type 1 diabetes in Jan. of 06. She responded to this in the most positive way. Her docotrs were so impressed with how well she delt with it that they recommended she be put on the insulin pump. Through all of this she worked hard and achieved honor roll at school and was educating her fellow students about Type 1 diabetes. The year before her Grandparents wanted her to visit them in Germany. We were reluctant to do this because of the Diabetes but her doctor felt that she was so responsible and mature compared to other kids her age with Type 1, that she should be allowed to go.

In March of 2007 I took Alexis to see her Pediatrician for a well check up before her trip to Germany. That is when Alexis recieved her first Gardisil injection. Alexis asked for it to be given in her leg because she prefered shots in her leg. We did not notice any side effects at that point….Because gardisil is a 3 part injection we had to return to the doctors office right before Alexis left on her trip, for the 2nd injection in June of 2007. Again there were no immediate side effects. A couple weeks later she left for Germany. While she was in Germany most everything went well. Her grandparents said she did act a little strange and out of character for her, but nothing they thought to be too serious.

When Alexis arrived back home from her trip, I noticed that she did not experience jett lag like we all had the last we all went to Germany. Also I thought it was odd that she didn’t (or couldn’t) cry when she was told that our 12 yr old dog had passed away while she was gone. She had always been a very sensitive child. As time went on more and more strange behavior very unlike Alexis was happening. She was getting in trouble at school and was unable to concentrate or retain anything she learned in school. I was taking her to every kind of doctor I could think of. Every test that was done came back normal. Things progressivly got worse. At this point her personality had changed 100%. She would go through bits of rage and she would scream at me and call me names and tell me how much she hated me and our family. She said she wanted to be taken to an orphanage and be addopted by another family. At this point doctors and school staff were telling me that Alexis was acting out and testing her boundries. I argued with all of them. I knew there had to be something medical going on, although doctors and the school were not listening to me. She would have what looked like huge panic attacks…her heart would pound so hard you could see her chest moving. Sound and movements bothered her. She would talk about “things looking funny or strange” She said that peoples faces made her sick to her stomach…people on TV and everyone around her….she would look around as if she didn’t know where she was.

Soon I realized that she was not sleeping AT ALL. She would be in her room all night writing notes. Nonsense notes that never really made sense. She became obessed with food and would eat anything she could get her hands on while we were asleep. I didn’t realize this at first because she was still being pretty responsible with her diabetes and giving herself the insulin she needed to correct for the food. One day she stuck her tongue out at me and I noticed a huge bump on the side of her tongue. She had no memory of how the bump got there, and it was BIG almost like she had almost bit off a chunk. Looking back now, I think this is when the seizures started in her sleep.

I had taken her back to see her Endocrinoligist and at that point her doctor suggested that we see the in office Psycologist thinking that maybe she was having issues being a diabetic. I told her that I really didn’t think it had anything to do with her diabetes, but she wanted us to try. On the 2nd visit with (Cindy Peterson) the Psycologist…she came to the conclusion that Alexis had been sexually molested while she was in Germany. I was so upset and asked her why she thought this. She said that Alexis talked about seeing nudity in Germany…(HELLO, have you ever been to Europe??) Nudity is everywhere in Germany and Alexis was a teenager!! I talked to Alexis about this for many hours and on different occasions. Alexis swore to me that nothing like that happened in Germany. I spoke to her grandparents about it and they said that nothing like that happened. Seemed like the only one that believed it was Cindy Peterson (months later she apologized for being “wrong”!!! but at that point every doctor after Cindy Peterson was subjected to her notes and I was labeled as a “mother in denile”). Cindy sent us to see other Psycologist and Psychiatrists. The only thing they knew what to do was throw antipsychotic medications at her. Nothing worked…she only got worse. She started throwing up everything she ate, and then couldn’t wait to eat more.

By January 2008 I had taken her in to see her pediatrician again and she was given the 3rd shot in the gardisil series. Things got much worse. Two weeks later we were back at her Pediatricians office…she had lost 5 lbs in a week and was throwing up a lot and was not sleeping AT ALL. The doctor sent us to Presbyterian hospital. Alexis was admitted in and spent the next 4 days getting blood tests, an MRI And a CT scan. Everything came back normal. I was told (once again) that nothing medical was wrong with my daughter. They sent her to Kaseman Behavioral Unit. There she was treated like an animal. They put her on many more kinds of antipshchotic medications, none of which helped her sleep or stoped the vomiting. They told her that if she threw up her food she would not get anything else to eat. They seemed to have no idea how to deal with her diabetes and I had to constantly tell them and show them how to deal with it. She was not allowed to be around any of the other children there and was told she could only be in her room or walk up and down a short hall. Since they would not give her any food if she vomited they gave her a bucket. On the 4th day 2 nurses witnessed her eating her vomit from the bucket. After 5 day of being there they said she was stable (?) and sent Alexis home. That day she was not able to keep any food down and she did not sleep at all that night. The notes were lined up on the banister the next morning when I woke up.

The next day we were told to take her to a new Psychiatrist. We did that and I tell ya, that lady was almost in tears. She had no idea why we were sent to her. She could see right off the bat that she would not be able to help Alexis. She told us that she thought we were getting the run arround. We went home and called her Pediatrician and begged her to help us…she was reluctant but said she would make some calls and get back to us. We were able to get her into the Childrens Psychaiatric Hospital at UNMH. This was on a Friday night so since their Psychiatrist would not be in until Monday they tried to focus on getting Alexis to sleep. They gave her high doses of Trazadone, and she still didn’t sleep. The next morning I went to see her and she was sitting in a chair in the front room and she was slumped over and drooling and moaning. When I walked in she slowly raised her head and almost in slow motion said “Hi mommy”. I got her up and took her to her room and tried to get her to lay down and try to sleep. She started dozing off and I thought “YEA, she is going to sleep!”. Within 5 minutes her face clenched as if she were in pain…her eyes twitched and her mouth filled up with saliva. They noticed right away that Alexis was not going through behavioral issues. On Monday morning when the doctor showed up I was telling her exactly what was happening and while I was telling her Alexis had another “spell”. The psychiatrist noticed right away that she might be having seizures. An EEG was done and they found out she was in fact having seizures that were all concentrated in her frontal lobe. The part of our brains that control our personality!!! She had been having seizures for so long and no one noticed, until just then!!!

Alexis spent the next 6 months at UNMH and Carie Tingley. They did every medical test on her that they could come up with. EEGs, CT scans, MRI’s, 2 spinal taps, muscle biopsy, tons of blood tests sent out all over the United States, Plasma Phresis, IVIG…every test you can imagine and then some. Everything came back normal. They determined that she was exposed to a virus and her body made antibodies to attack the virus, She had not been sick and had not shown any symptoms of having a virus or even the sniffles. The only virus she had been exposed to was the Gardasil shot. They also determined that she suffered brain damage because of the seizures. She now is testing at about a 4th grade level and still to this day is unable to attend school. She has seizure activity every day and night, almost constant. She is in constant pain and no medication seems to help. Every day more symptoms pop up. She has numbness in her arms and legs, headaches, horrible pain, loss of bladder control (now she has to wear adult diapers), constipation (and when she is able to have a BM they are the size of a grapefruit and plug the toilet every time!), vision problems, memory loss, brain fog, cronic fatigue, leg cramps, back pain, dizzyness, she repeats the same things over and over again with no memory of having said it a million times, she is unable to retain anything that is said to her or that she sees, rapid heart rate, high blood pressure…….

In 2009 she spent 4 days in Presbyterian hospital for high heart rate and super high blood pressure. All test came back normal….In November I took her to Barrows Neuro in Phoenix. She spent 6 days attached to an EEG machine and under went another MRI. All the doctors were baffled and don’t know what to do. Her Neurologist is very experienced and has never seen anything like Alexis is going through…..

We are all heart broken that a girl that showed so much promise 3 years ago had her life as we knew it taken away. She will never be the same. We are pretty much out of options…our next step is getting an adult Neurologist to look over her case and see if she would be a canidate for VNS therapy. This would mean having surgery to implant a device in her chest that would send impulses to her nerve endings in the base of her skull to try to stop the seizures before they get big. Alexis is scared and does not want to have this done, but I feel we have no other choice because none of the anticonvulsants are working.

Lawyers have refused to include Alexis in their class action law suits because her first symptoms were more “behavioral” in the begining but we now know that was due to seizures!!!! I spend so much time these days trying to get Alexis special services that our government provides to people who have tramatic brain injuries. I was told Alexis is on a waiting list of over 47,000 people here in New Mexico and it could take up to 10 years for her to receive any benifits (that she desprately needs NOW) because there is no money in the fund to support the people in need. This is such a horrible nightmare that I wish we could all wake up from!! Unforunately this is real…very real.

Thank you for taking the time to read Alexis’ story….some of these things are very hard to talk about and probably hard to read as well, but we all need to know what is happening to our children and be able to make educated decisions.

Kristin

kris3 Kristin Clulow

– Newcastle, NSW, Australia Firstly, I must make a disclaimer, although this is a website dedicated to Gardasil victims, there is no medical proof that directly links my symptoms to the vaccine, however extensive personal research and the opinions of highly trained medical professionals point to one trigger – Gardasil.

I must also apologize for lengthy or any slightly inaccurate descriptions – this paper is simply my version of the events that I have experienced in the past 18 months. This is my story. ‘What we do does not define us…what defines us is how well we rise after we fall’.

I am 26 years old. I had two shots of Gardasil – May and August 2008. From this time, my life changed. Before I got sick, I worked four different jobs (100+ hours a week) – I worked at a top accounting firm in business development/ marketing/ events, I managed a performing arts school (450+ class enrollments), I worked in retail at a newsagents in customer service, and prepared tax returns. I constantly ran between jobs – but loved it. I bought my first house at 21 as well as renovating it, another house, and a three storey building. I was constantly on the go, always looking for the next project.

I had a degree – Bachelor of Business (double major in Industrial Relations / Human Resources & Management), as well as completing various other courses. I was highly regarded by my peers and management at my workplaces, and was always deemed to be an excellent worker. I was quite good musically and artistically. I was at my final grade in piano and had plans to finish my music studies and obtain teaching qualifications. I was fit and healthy, and was quite a tom boy, taking part in most things. I didn’t drink, smoke, take drugs or do anything that could harm my body. I was not overweight (I am about 55kgs). I loved being outside, playing sport and socializing with friends. I was extroverted and outgoing.

In March 2008, 2 months prior to my first shot, my marriage broke down, which is bound to cause stress and a decrease in my immune system, which may have impacted on this. I moved house, got a new job, and enjoyed my new found single life. In May, I got my first shot. Two weeks after this, I fell at karate (playing leap frog for warm up) and broke my left foot. I should mention that I was quite tough and didn’t often break bones or have injuries. I mean, we were doing exercises the week before and I kept going even after blood was coming through my uniform from my scraped elbows. I didn’t think it was broken, but knew I had an early meeting at the office the next morning, so I thought best to get it strapped up right.

I broke the ‘little toe’ bone and was restricted to a moonboot and crutches and rest & elevation for 6 weeks (a fantastic fashion statement!). That didn’t happen. I started a new job as an Executive Assistant to the Managing Director at a property development firm the next week, so I lived on painkillers for the next few weeks and still went out most nights. I was due to go to Thailand in July but I cancelled.

I didn’t relate anything at this point as being Gardasil related, I just put it down to being clumsy. I got my second needle in August 2008, soon after I came off crutches.

In September (fathers’ day weekend, about four weeks later), my eyesight went. On the Thursday night, my eye began to hurt, so I took my contacts out and put my glasses on. It continued to get worse on Friday, more red, and my eyesight got worse so I went to the GP and an eye specialist who informed me that my contact had scraped the skin off my eye. Mind you, it has never done this before or since. I was given drops and cream and told not to see for the weekend. Me being me though, I had to work the next day at the Newsagents, so I drove (stupid idea!) about 30 minutes where I was promptly told I was an idiot and to go home and rest. My eye was in agony now so I did that. I was later informed that I could have gone blind.

My eyes cleared up and were fine. Everything then started to gradually happen. I started feeling sick – like morning sickness (I assume) – nausea all day. I would look at food, know I had to eat it, but would throw it up each night. I was so tired but couldn’t sleep at night. I would doze on and off in the midst of throwing up. It must be noted that I loved food – I was not in any way bulimic – but it felt like that. I thought it was just a bug and that I would quickly get over it. I went to the doctors (the same place as I got the injection) and was told it was a pinched nerve and that I would get over it.

I’ll mention at this point that I had told my GP about my marriage breakup and subsequent events, and my broken foot, and they were aware of this prior to the shot, but still administered it – and did not warn me of any potential side effects. I was going to physio for my foot so I could regain my balance and coordination. I can’t recall why but I had to get marbles out of a jar one at a time and put them back in. I struggled with this – weird I thought. The physio recommended that I go back to the GP and get a referral to see a neurologist (once again, I sought assistance from the same people who gave me the vaccine).

They said there was no proof of anything being wrong from their tests (mind you, it was an ear examination and a knee reflex test). I was told it would be months before I could get in to see a Neuro. I was getting sicker by the day, and couldn’t understand why. It was just like I was being poisoned. I was still working insane hours, and by this stage, had lost my handwriting, which is not good when you’re in charge of organizing some very busy people! You learn to rely on your memory and typing skills, and compensate however you can.

To make things worse, I was now dragging half of my body around as I had paralysis to my right side. I lost the ability to run, dance, jump and was losing my ability to walk. I walked like a duck, could not keep shoes on and I had no balance or coordination. I had to learn how to do everything with my left hand. I was having vertigo blackouts and would fall down stairs (yes, I fell down concrete ones too). I would see things, and know they were there, like a coffee table – but I would run into them. I could no longer wear heels. I started getting tremors. This made it even more difficult to do things. My whole body would shake; I couldn’t even carry a drink or plate of food without spilling it everywhere. I was getting brain fog and double vision and oversight in my right eye.

In November, my granddad passed away. In the space of a few months, my world as I knew it had disappeared – I had lost all that I knew – my husband, my job, my home, my health, a family member – no one should have to go through this.

I must mention also, that my immune system was shot. So on top of this, I would get every cold and flu that surfaced. But I would be out of action with it for a week and be impacted worse than everyone else. Everyone was telling me it was ‘stress’ – I knew it wasn’t. Stress does not do this.

I went and saw my parents and stressed something was wrong. I must say, I am not a drama queen, and will only go to the doctors when I am on my death bed. Mum got me in to see a doctor that same week. I got in to see a GP straight away (Dr Ted Bennett) who knew there was something wrong but to my immense frustration he couldn’t explain it. He simply wrote ‘bizarre’ on the referral and got me in to see a Neuro (Dr Michael Katekar) the next week. He sent me for an MRI scan, diagnosed me as having MS (as my symptoms were similar – there was no evidence on my scans however), and he admitted me to 3 days intravenous Methylpredisolone treatment. This treatment had little effect. I felt sick, sweaty, but still somewhat the same.

 I went for more scans as there was no proof that I had MS. I had heaps of tests, sought Eastern methods of treatment and attempted everything to make myself feel better, all with no lasting improvement. I had MRI / CT scans / X-Ray tests for (inter alia): Thyroid, Sarcoidosis, MS, Brain Tumour, Stroke, Back Scan, Front Scan, 2 x Spinal Taps, Visual Evoke potentials, Sensory Evoke Potentials, Brain stem Evoke response Audiomentry (Bera), 2 x EEG, Petscan, Many Blood tests for Lupus & HIV (amongst others).

 I gave up my executive assistant job role in December 2008 as I didn’t know what was happening to me. I knew I wasn’t normal but didn’t know why. I had January off to rest and had to force myself to get up off the couch – for an active girl that you couldn’t pin down, it was abnormal. I went to see a Neuro in Sydney (Prof. Michael Halmagyi) to get a second opinion. He told me that, in his opinion, and the opinion of others, it was the vaccine.

By June sixteen girls had presented to him with similar symptoms. They had all responded to Methylpredisolone treatment. I informed him that I had this treatment in November but had not responded. He admitted me to hospital to have five days of this treatment. To say that I was sick when I got out of hospital would be an understatement. I was sweating, hallucinating, dizzy, less coordinated, couldn’t speak normally or eat normally. I went back to my old job at the newsagents and felt sick every day.

The next few months (February 09 – July 09) showed further decline. My motor skills were getting worse, my speech was much worse, as were the tremors. My days were jam packed full of work, physio, doctors, scans – and meanwhile you’re still expected to eat properly, exercise, sleep 8 hours a night, work 40 hours a week – it was impossible.

I was wrecked carrying around half my body, trying to speak semi-normal. I gave up work in July and thought, for the first time, my life is about me. For the first time, I’m being selfish. And it felt good! At the advice of Prof Halmagyi, Dr Katekar and Dr Michael Barnett (my immunologist) I went back to hospital for 5 days of Human Immunoglobulin treatment, called Sandogoblin. This was administered intravenously. This medication, which I believe helped save my life, had to be purchased from the company that manufactures Gardasil in Australia. I also had a PET scan (Google it) a few weeks before this and the results came back when I was in hospital – there were 2 main areas of concern – My ovaries were overactive, and my cerebellum, which controls my motor functions, had switched off – it wasn’t diseased, it had simply turned off, like a light bulb. There was no guarantee that this would ever switch back on. I refused to believe it. I was so sick of being sick and that made me more determined.

I had an immediate ultrasound of my ovaries, which showed that there was no problem. Every 28 days I have a ‘top up’ of this treatment (I now get a drug called Octogam which does the same thing) and this, all being well, will continue indefinitely.

I have improved gradually and slowly but it’s a lot better than going downhill. My days are now filled with the gym (2 hours of cardio, weights, stretch, aqua, swimming and hydro), Occupational Therapy, Speech Therapy, cooking and cleaning. I have found that the Nintendo Wii is awesome for coordination, and the Singstar is great for speech. For a list of any other exercises, please contact me – I’m happy to help! From a process of elimination I have been diagnosed with an illness called ADEM (once again, Google it). Basically, the myelin sheath that surrounds my nerves has been eaten away. Dissimilar to MS patients, the sheath should grow back with the help of the treatment and good old fashioned hard work exercises. This diagnosed illness can be caused by a vaccine and cause paralysis down one side of the body.

From Google, a definition is as follows: Acute disseminated encephalomyelitis (ADEM) is a neurological disorder characterized by inflammation of the brain and spinal cord caused by damage to the myelin sheath. The myelin sheath is the fatty covering which acts as an insulator on nerve fibers in the brain. ADEM may occur in association with a viral or bacterial infection, as a complication of inoculation or vaccination, or without a preceding cause. Onset of the disorder is sudden. Symptoms, which vary among individuals, may include headache, delirium, lethargy, coma, seizures, stiff neck, fever, ataxia, optic neuritis, transverse myelitis, vomiting, and weight loss. Other symptoms may include monoparesis (paralysis of a single limb) or hemiplegia (paralysis on one side of the body). The disorder occurs in children more often than in adults.

Last week, there was an article in a few Australian newspapers that links Gardasil to MS symptoms and all girls with this have made a full recovery (music to my ears!). It must be noted that I, nor anyone in the known history of my family has had MS or any such disease. The only issue that I had was cysts on my ovaries as a teenager, for which I went on the contraceptive pill. There is a strong history of cancer in my family (hence the injection being administered), but we have since found out that Mum does not carry the gene, so it therefore cannot be passed on to me.

So, what is next? Although I am not currently working, my days are dedicated to exercise and therapy. I have applied for University next year, to do a postgraduate degree – Master of Secondary Teaching. This will be two years full time, which will allow me time to recover. I am continuing to improve, and I am determined to get my health to back to 100% – to wear heels, to play sports, and to dance. I cannot wait to work again. I have lots of plans, including educating girls in a similar situation. Being sick has made me realise the important things in life. My advice to others in a similar situation is:

  1. Get a good Neurologist – someone who believes you. This is paramount.
  2. Get a treatment program – my treatment, Octagam, is working – slowly and gradually. This may not be relevant with other symptoms, but some sort of treatment program, I feel, is essential.
  3. Get a PET scan (it was the only test that have shown up anything for me). I didn’t get a heavy metal urine test, a mixup with the paperwork, however Gardasil is full of Aluminium, so it seems logical. Any other test will most likely show up nothing and the doctors will believe that you are fit and healthy.
  4. Be logical, systematic and fight for answers – if you’re not happy with your doctor, go to someone else (as I did) and have a list of questions to fire at them. Be well informed – if you are told you are drunk, stressed, insane, bulimic etc DON’T BELIEVE THEM!! and refuse to take NO for an answer. Gardasil side effect will leave you with no energy to fight, so make sure you have someone with you who will defend you.
  5. Never give up – there will be good days and bad days, and some days where you don’t feel like getting out of bed. I just think of three things when this is the case (pick one which works for you): There are people in the world worse than you. You have two choices each morning when you wake up – you can choose to be happy or sad – I choose to be happy. And finally, Harden up. (sorry – I know it’s harsh, but it works for me!)

I hope this has given you some insight and I understand what each of you are going through. It is a horrible disease and one which no one should have to suffer through. If anyone wants to contact me, I am on facebook (Kristin Clulow) or on email kristinclulow@live.com.au Thanks for sharing with me, and I hope it may have helped!

Nicole

 nikg

nikg3nikg2
Hi my name is Nicole Marie Goodman. I am 18 years old .I believe that the gardasil is the reason for my current state. I could not believe that a vaccine could truly hurt and injure all these innocent girls.

I had no idea about the shot I just heard prevent cervical cancer and I was all for it but never once was I told that it could hurt, paralyze and for some severe reactions unfortunately cause death for and young girls and women. We have to put a stop to this and take the vaccine off the market completely. I would like to share my story with girls who have traveled the same road I have.

My journey begins on one night on I came home from cheerleading practice and I was exhausted and had later on that night. so I decided to take a quick cat nap to rest up for my fun night, I was with my friend and we were home alone at the time my mother and siblings were at the ymca. I started slowly waking up from my nap still have asleep. until I really woke up to the most excruciating pain in my right calf. I told my friend and she tried to see if she could message it an rub it out thinking it was a simple muscle cramp. so after she did that the pain just started excluding until I suddenly found myself in the worst pain with tears streaming down my face .so I turned to my friend and asked her to call my mother and tell her to come home. my mother came home and asked me what had happened so I told her so after telling her what had happened she suggest that I try icy hot which unfortunately made the pain worst. So after an hour my mother and I decided we should go to the emergency room to get it checked out. we arrived at the e.r. and they put a shot in my muscle relax cent directly into my calf muscle using a syringe and told me to sit patiently for about an hour to see if it would respond to the muscle cramp. it did not so I was discharged and sent home with narcotics was told to follow up with my primary .so I went on two months living on narcotics because that was the only way I did not find myself in pain. so about a month went on feeling just fine until my right calf again to twitch so I was sent to an orthopedic which then told me I could have a possible tumor in my head .so on April first I was admitted to children’s hospital. Were I was cleared for my brain. I stayed in children for a week ran test and nothing acute showed up was diagnosed with kinetic movement disorder. Then I was sent to get an afo made from nopco. Which was around may when I was fitted for that and went to the nopco clinical. on april fourth I had my first episode .i felt perfectly fine that night I was cleaning my room and all I remember doing was getting up to go to the bathroom and apparently did not make it there. my mother heard the big bang and had my sister go see where it came from my sister go see where it came from my sister checked every room just when she thought she was done she remembered she forgot my room. so she opened the door and there she found me past out on the floor my mother came running in and called 911 after calling the paramedics arrived in a matter of five minutes and transferred me to Tobey hospital in Wareham. There I came conscious but was still lethargic and still out of it. at Tobey they did multiple tests and blood work after those test were done .they deci8ded to transport me to mass general hospital. when I arrived at M .G.H. more tests were done and was admitted to the hospital for a week .i was then discharged to go home on crutches and was told to follow up with pt ant ot and see my primary doctor. Then in October found myself back into the er with chronic abdomen pain and persistent vomiting and unexplained weight loss. then I was admitted for gi problems and they’re impression was that I had an anomaly in small bowel series. they ran test again also such as mri ekg eeg emg iv fluids and lab work .when testing came back I had an abnormality on my ekg and was placed in the icu for my heart. all had a cope done to see how much acid was in my stomach along with checking for a possible ulcer .after all the gi tests I found myself right back in the er in both hospitals with more gi problems. the doctors could never actually find a cause for my gi problems nor my drastic weight lost. the symptoms just slowly started to drift away. then I was sent to pt and ot again to be fitted to a kfo because the tremor was progressing . and on my fifth I had another fainting episodes .i was perfectly fine driving back from night school I pulled in my drive way and all I remember was shutting the door to my jeep. I blacked out completely and I walked up my stairs and there I collapsed again. Wasn’t as bad as last episode in October though. so from my house I was transferred to Tobey to be checked out then transferred to MGH to be evaluated by the neurology team. where there I dealt with ignorant doctors telling me it was in my head. so I was sent home in the wheel chair not mobile. I was home extremely weak for a week and then a week later found myself hard as a rock with tone throughout my legs. weeks went on till I was sent to a physiatrist were he told me it is defiantly dystonia and begged me to give children’s hospital a second chance ,more like a thousand. so I arrive at children’s and got admitted and have more tests repeated and a baclofen pump trial. the trial was done and got positive results out of it. I was told I would be getting the surgery until two hours later when they came in specifically told me it worked and could pe a possible step to recovery. later that day my parents and I had a team meeting with the neurology team and they told me the reason why they put the trial aside because they were convinced it was conversion disorder. So after hearing that it was in my head for the second time I demanded to be discharged that night. there I went home saw the physiatrist and he told me he would get that pump in me .so I recently just had another trial done and once again had positive outcomes from it. While my diagnosis was conversion disorder no one wanted to touch me with a ten foot pole. So my tone progressed and spread to my bladder and arm. Now I am cathing myself and wearing a sling on my left arm because of the tone and pain .That is my current were I stand right now

I would like to thank everyone that took the time to read my story to all the gardasil girls out there we will make it through this and find a cure. and for any parents or girls that would like to ask questions about my story or symptoms you can email me at nikkigood3@gmail.com or if you’re a member of face book you can friend request me .

Thanks again
Nikki (Nicole Goodman)

The links you see below are articles in the Cape Cod Online, about not only Nicole, but some other girls in the same area, who have also become ill after being injected with the gardasil vaccine.

 http://www.capecodonline.com/apps/pbcs.dll/article?AID=/20091015/LIFE/910150301

http://www.capecodonline.com/apps/pbcs.dll/article?AID=/20091203/LIFE/912030301

8 Responses to “Private: Spotlight on a Gardasil Girl”

  1. Dawn Underhill, on December 23rd, 2009 at 5:23 am Said: Edit Comment

    I just want to say, inbetween wiping my tears, that I have witnessed Nicole’s battles FIRSTHAND, and it is heartwrenching to see such an active and talented young person struck down in the middle of her prime years of life. Daily she battles to do what we all take for granted in the ability to live normal lives. Through all this, she may have days of despair, but knows that she needs to be strong for herself, her family, and fights to find a cure. My heart goes out to each and everyone of you young women who have been inflicted in a negative manner from this vaccine. I pledge to continue working with the creators of this website and organization in that we will hold the manufacturers, distributors and prescribers of this drug accountable to you! You all are my heroines and must know that you have so many supporting you in your lives. Dawn Underhill, Nicole’s aunt

  2. Laurie Dean-Smith, on December 23rd, 2009 at 3:40 pm Said: Edit Comment

    Nikki, I really hate that it took this for me to meet you,
    but I am so thankful that I have. Your strength and attitude is a force of true light! You and your family remain in my prayers.

    Laurie Dean-Smith

  3. Dawn Underhill, on December 23rd, 2009 at 5:04 pm Said: Edit Comment

    Should Nikki, her mom or I ever be able to help ANY OF YOU with anything, please do not be shy of asking! On Facebook I am Dawn Alden Underhill, Nicole is Nikki Good and her mom is Heather Alden.

    It is up to us to all support each other through the ups and downs and know that we are connected for a reason and it is to befriend someone in need and to help people make educated decisions on their health management.

    Through the strength of all you girls/women we can and will make a difference and save lives.

  4. [...] The Truth About Gardasil [...]

  5. Felicia Beaumont, on January 3rd, 2010 at 11:03 pm Said: Edit Comment

    Nikki, I’m on facebook, find me.

    Have you been tested for a disorder called Macrophagic Myofasciitis?
    The daughter of one of the doctors who was a part of the trials contracted it after her shot.

  6. Mair, on January 3rd, 2010 at 11:24 pm Said: Edit Comment

    I’m friends with both of you on facebook.

  7. Dawn Underhill, on January 4th, 2010 at 6:23 pm Said: Edit Comment

    Nikki will be going in the end of January for surgery for the (?sp?) Baclovan Pump for her mid to lower torso…. keep fingers crossed.

    If any of you girls ever needs to talk, I am here for you!

    Nikkis’s aunt

  8. Dawn Underhill, on January 4th, 2010 at 6:25 pm Said: Edit Comment

    Macrophagic Myofasciitis, or MMF, is a rare muscle disease identified in 1993. The disease is characterized by microscopic lesions found in muscle biopsies that show infiltration of muscle tissue by PAS-positive macrophages.[1] Specific causes of MMF are unknown, but the disease is most often associated with the pathological persistence of aluminium hydroxide used in some vaccines. Clinical symptoms include muscle pain, joint pain, muscle weakness, fatigue, fever, and muscle tenderness. A diagnosis can only be identified with an open muscle biopsy of the vaccinated muscle.